Resources for Families of Children who are Deaf and Hard of Hearing
There are thousands of resources for parents of children who are deaf and hard of hearing. It’s easy to feel overwhelmed by it all! We have tried to help sort through them to compile a listing of major national and statewide organizations for deaf and hard of hearing topics. These organizations provide information about books to read, materials to try, parents to meet, information to learn, and much more. We have not listed any specific materials in this section, as we strongly feel that the age of your child, the mode of communication chosen, the level of your child’s hearing loss, and the child’s other siblings are all factors that will affect which materials are helpful and relevant to you.
National Resources
Alexander Graham Bell Association 3417 Volta Place NW |
A membership organization and information center focusing specifically on children with hearing loss and the auditory approach. Provides newsletters, journals, and information relating to oral education and the use of technology. Financial aid programs available for children with hearing loss. |
American Academy of Audiology (AAA) 8300 Greensboro Dr. Suite 750 |
A professional organization dedicated to providing quality-hearing care to the public. Offers professional development, education, research, and increased public awareness of hearing disorders and audiologic services. |
American Society for Deaf Children P.O. Box 3355 |
A nonprofit, parent organization that provides a positive attitude toward signing and deaf culture. It also provides current information, support and encouragement to parents and families with children who are deaf or hard of hearing. Publishes “Endeavor”, a publication free to families for one year. |
American Speech-Language-Hearing Association (ASHA) 10801 Rockville Pike |
ASHA is a national professional association for speech-language pathologists and audiologists. Provides information for professionals and consumers on topics of current interest. |
Boys Town Boystown National Research Hospital |
Boys Town is a research center on hearing loss and related disorders. Provides educational materials for hard of hearing kids and their parents in an easy to access way. |
Cochlear Implant Association, Inc. 5335 Wisconsin Ave. NW, Ste 440 |
Provides information and support to cochlear implant users and their families, and professionals. |
Families for Hands and Voices P.O. Box 371926 |
Hands & Voices is a parent driven, non-profit organization dedicated to providing unbiased support to families with children who are deaf or hard of hearing. We provide support activities and information concerning deaf and hard of hearing issues to parents and professionals that may include outreach events, educational seminars, advocacy, lobbying efforts, parent to parent networking, and a newsletter. We strive to connect families with resources and information to make informed decisions around the issues of deafness or hearing loss. |
Family Support Connection at Lifetrack Resources. Lifetrack Resources |
The Family Support Connection provides unbiased information, referral, and support to families of deaf or hard of hearing children living in Minnesota. Parents contacting the Family Support Connection can obtain information about a wide variety of topics such as American Sign Language, educational options, cued speech, parent deaf and hard of hearing children, cochlear implants, auditory training and assistive listening devices. Parents can obtain much information about these topics as well as an online copy of our resource directory by visiting http://www.familysupportconnection.com |
Family Village Deaf and Hard of Hearing Resources |
A global community for disability related issues with a section on deaf and hard of hearing information. |
Gallaudet University –Laurent Clerc National Deaf Education Center National Deaf Education Network and Clearinghouse |
Call for a free Odessey newsletter:1-800-526-9105. Galludet is the only four-year liberal arts university for students who are deaf or hard of hearing. Centralized source of information on topics dealing with deafness and hearing loss. Has helpful books and resources for parents of children who are deaf or hard of hearing. |
John Tracy Clinic 806 West Adams Blvd. |
Provides parent-centered services to families of children birth through five years who have diagnosed hearing losses. Offers free correspondence course helping you relate to your child who is deaf or hard of hearing. |
National Association of the Deaf (NAD) 814 Thayer Avenue #302 |
Provides consumer advocacy information and support for the Deaf. Public information center, research library and bookstore are available. |
National Information Center for Children and Youth with Disabilities (NICHCY) P.O. Box 1492 |
NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators and other professionals. Special focus is on children and youth up to age 22. |
National Institute on Deafness and Other Communication Disorders National Institutes of Health |
NIDCD is mandated to conduct and support biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. The Institute also conducts and supports research and research training related to disease prevention and health promotion; addresses special biomedical and behavioral problems associated with people who have communication impairments or disorders; and supports efforts to create devices which substitute for lost and impaired sensory and communication function. |
Self Help for Hard of Hearing People, Inc. (SHHH) National Chapter |
Links to education/ children with hearing loss, organizations and other resources on the web. Listserv for parents of heard of hearing kids |
Listen Up Webpage There are a number of different pieces of information, including a parent listserv, materials and programs to purchase about children exercising residual and speech skills, information resources, a special collection of books related to hearing impairment and fun places for kids. It can be found at http://www.listen-up.org/ |
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